Supporting children with developmental disabilities

Submitted by Shelley Joyce on Tue, 05/01/2007 - 7:18pm.

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Supports and services for children age 0-18

4,541 receive Service Coordination/Case Management.
1,118 received some level of Family Support services during the past year, which may include information and referral, respite for family caregivers, in-home assistance, home adaptations, or specialized equipment.
252 receive long-term services designed to support children in the family home.
213 receive Intensive In-Home Supports, which includes children on special Medicaid Waivers who require significant levels of assistance because of behavior or medical needs.

Over 700 children with developmental disabilities currently live outside their family home, including:

502 live in foster care.
140 live in group homes.
59 live in nursing homes.

Children and families waiting for services

Outreach to identify children with developmental disabilities is minimal because there are few public services to offer.
Over 2,258 children are currently identified as eligible but not receiving Family Support services.
Many children with high needs have applied for Intensive In-Home Supports but have not been able to access these services. The program is limited to a small number of children with the most significant disabilities, and many children do not meet the strict eligibility criteria.
Data Sources: 8/06 Oregon Seniors & People with Disabilities; Oregon Dept. of Education 2/07 v2

FAST FACTS

It is estimated that over 12,000 children birth through 18 in Oregon experience a developmental disability.
Many families do not contact their county developmental disabilities office because there are few services available to meet their needs.

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